NCT03990428RecruitingAccepts Healthy Volunteers

Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases

Memorial Sloan Kettering Cancer Center

Start Date

6/14/2019

Completion Date

6/1/2027

Summary

This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?

Eligibility Criteria

Age Range: 18 years to No maximum

Inclusion Criteria: * Self-identified informal caregiver (family member or friend who provides unpaid support) for a patient with Erdheim-Chester Disease (or LCH, RDD, or JXG for the exploratory aim). * Proficiency to complete study assessments in English, evaluated at the time of consent. * Age 18 or over. Exclusion Criteria: * Participant unwilling to sign consent. * Participant unable to complete web-based assessments.

Interventions

BEHAVIORAL

online surveys

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Conditions

Supportive Care Needs of Caregivers

Locations

Memorial Sloan Kettering Cancer Center

New York, New York 10065

United States