NCT04690374Recruiting
Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
Memorial Sloan Kettering Cancer Center
Start Date
12/22/2020
Completion Date
12/1/2027
Summary
This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.
Eligibility Criteria
Age Range: No minimum to No maximum
Inclusion Criteria:
* Participants must have a diagnosis of desmoplastic small round cell tumor
* Participants may be of any age as long as the appropriate consent and assent may be obtained
* Willing to provide historical and longitudinal clinical data
Exclusion Criteria:
* Participant unwilling to provide consent or share historical and longitudinal clinical data
Conditions
Desmoplastic Small Round Cell Tumor
Locations
Memorial Sloan Kettering Cancer Center (All Protocol Activities)
New York, New York 10065
United States