NCT04808596Recruiting
Pulmonary Hypertension Biorepository and Registry
University of Kansas Medical Center
Start Date
8/10/2020
Completion Date
7/31/2027
Summary
Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.
Detailed Description
The aim of this project will be to establish a broad and wide-ranging registry and biorepository of blood samples from patients with pulmonary hypertension, including all WHO groups I-V to be used for future research in these areas. This will be both a retrospective and prospective project. The registry and biorepository will be utilized to study and grow our knowledge of the cellular mechanisms and mediators of the disease and, in turn, contribute to advancements in treatment.
Eligibility Criteria
Age Range: 18 years to No maximum
Inclusion Criteria:
1. The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP)
2. The participant has a diagnosis of pulmonary hypertension confirmed by right heart catheterization
3. Patient is ≥ 18 years of age or older
Exclusion Criteria:
1. Participant declines to participate (living patients only)
2. Participant is unable to provide informed consent (living patients only)
Conditions
Pulmonary HypertensionPulmonary Arterial HypertensionPulmonary Hypertension Due to Left Heart DiseasePulmonary Hypertension, PrimaryPulmonary Hypertension Due to Lung Diseases and HypoxiaPulmonary Hypertension, Primary, 4Pulmonary Hypertension, Primary, 2Pulmonary Hypertension, Primary, 3Chronic Thromboembolic Pulmonary Hypertension
Locations
University of Kansas Medical Center
Kansas City, Kansas 66160
United States