NCT04883905Recruiting

ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)

Alnylam Pharmaceuticals

Start Date

4/26/2021

Completion Date

4/1/2027

Summary

This global patient registry is being conducted to characterize the natural history and real-world clinical management of patients with AHP, and to further characterize the real-world safety and effectiveness of givosiran and other approved AHP therapies.

Eligibility Criteria

Age Range: 12 years to No maximum

Inclusion Criteria: * Documented diagnosis of AHP, per physician's determination Exclusion Criteria: * Currently enrolled in a clinical trial for any investigational agent

Interested in This Trial?

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Conditions

Acute Hepatic Porphyria

Locations

Clinical Trial Site

Birmingham, Alabama 35233

United States

Clinical Trial Site

Gilbert, Arizona 85234

United States

Clinical Trial Site

San Francisco, California 90074

United States

Clinical Trial Site

Baltimore, Maryland 21205

United States

Clinical Trial Site

Boston, Massachusetts 02114

United States

Clinical Trial Site

Minneapolis, Minnesota 55455

United States

Clinical Trial Site

New York, New York 10029

United States

Clinical Trial Site

Winston-Salem, North Carolina 27157

United States

Clinical Trial Site

Oklahoma City, Oklahoma 73120

United States

Clinical Trial Site

Philadelphia, Pennsylvania 19107

United States

Clinical Trial Site

Galveston, Texas 77555

United States

Clinical Trial Site

Salt Lake City, Utah 84112

United States

Clinical Trial Site

Seattle, Washington 98195

United States

Clinical Trial Site

Brussels,

Belgium

Clinical Trial Site

Leuven,

Belgium

Clinical Trial Site

Bordeaux,

France

Clinical Trial Site

Paris,

France

Clinical Trial Site

Toulouse,

France

Clinical Trial Site

Berlin,

Germany

Clinical Trial Site

Chemnitz,

Germany

Clinical Trial Site

Würzburg,

Germany

Clinical Trial Site

Milan,

Italy

Clinical Trial Site

Modena,

Italy

Clinical Trial Site

Madrid,

Spain

Clinical Trial Site

Stockholm,

Sweden

Clinical Trial Site

Zurich,

Switzerland

Clinical Trial Site

Taichung,

Taiwan

Clinical Trial Site

Taipei,

Taiwan

Clinical Trial Site

Cardiff,

United Kingdom

Clinical Trial Site

London,

United Kingdom