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NCT05392881Recruiting

Interstitial Lung Disease Research Unit Biobank

University of Kansas Medical Center

Start Date

8/9/2021

Completion Date

3/1/2032

Summary

Establish a interstitial lung disease (ILD) registry and biorepository to lead towards a further understanding of the disease.

Detailed Description

The University of Kansas ILD and Rare Lung Disease clinic sees hundreds of new patients per year. The investigators would like to leverage this resource to develop an Interstitial Lung Disease Research Unit (ILDRU) repository and database to help develop new methods for early diagnosis, uncover underlying genetic and environmental risk factors, as well as potential treatment targets in the broad range of interstitial lung diseases and rare lung diseases (RLD).

Eligibility Criteria

Age Range: 18 years to No maximum

Inclusion Criteria: 1. The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP) 2. The participant is being followed for the presence of autoimmune disease, ILD or other rare lung diseases at TUKHS. 3. The participant is ≥ 18 years of age. 4. The participant has signed an approved consent for this study (living patients only)

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Conditions

Interstitial Lung DiseaseSarcoidosisIdiopathic Pulmonary FibrosisPulmonary FibrosisHypersensitivity Pneumonitis

Locations

The University of Kansas Medical Center

Kansas City, Kansas 66160

United States