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NCT05434572RecruitingAccepts Healthy Volunteers

CIMR Neuromuscular Research Biobank

Virginia Commonwealth University

Start Date

3/17/2021

Completion Date

2/1/2030

Summary

The purpose of this research repository is to collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate. These samples will be stored at Virginia Commonwealth University (VCU) and will be used for future research with this population.

Detailed Description

The study involves collection of medical information about research participants and their families. No identifying information about family members will be collected. Research participants will be asked for any general knowledge they have related to possible neurological disorders. Research participants are also given the opportunity to provide blood, skin cells, urine, saliva, fecal matter, muscle tissue, cells, DNA and/or RNA samples. Before any study procedures take place, the informed consent form will be provided and reviewed with potential research participants in detail. Potential research participants will have an opportunity to ask additional questions before starting any study procedures.

Eligibility Criteria

Age Range: No minimum to 75 years

Inclusion Criteria: * Willing and able to give informed consent * Positive diagnosis or suspected diagnosis of neuromuscular disease, or * Family history of neuromuscular disease, or * Healthy volunteer * Age Neonates-75 Exclusion Criteria: * Unwilling to sign consent

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Conditions

Neuromuscular DiseasesNeuromuscular DisorderNeuromuscular Diseases in Children

Locations

Virginia Commonwealth University

Richmond, Virginia 23298

United States