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NCT06177990NARecruiting

Caregiver as Navigator: Develop Skills Online (CAN-DO)

Emory University

Start Date

12/26/2024

Completion Date

3/1/2028

Summary

This study is designed to learn more about ways to promote caregiver mastery online. 270 dementia family caregivers will be enrolled and randomized to take the CAN-DO online course immediately or after a waiting period. They will participate in interviews before and after the course; total time of study participation is 6 months.

Detailed Description

Family members and friends are the core of the uncoordinated system of care that tenuously maintains persons living with dementia in their community settings and delays their placement into more costly settings of institutional care, providing more contributed and out of pocket care support than Medicare and Medicaid combined. The CAN-DO program fills a significant gap in caregiver psychoeducation programming by focusing not principally on day-to-day care management but on the many substantial system navigation tasks that caregivers assume. Supported by preliminary efficacy data, CAN-DO will employ state-of-the art asynchronous interactive learning methods to enhance caregivers' mastery of skills and confidence to navigate healthcare and other (legal, financial, social service, and family) systems that are crucial to the continued community living of persons affected with dementia illnesses. This study will enroll 270 dementia family caregivers who will be randomized to take the CAN-DO course immediately or after a waiting period. They will participate in interviews before and after the course; total time of study participation is 6 months.

Eligibility Criteria

Age Range: 18 years to No maximum

Inclusion Criteria: * Family member or friend providing at least 4 hours per week of informal care for a community-dwelling person living with ADRD * 18 years or older * Has internet access * Does not have to co-reside with the individual * Understands, speaks, and reads English Exclusion Criteria: * Family caregiver plans to move care recipient to an institutional setting within the next six months * Care recipient currently enrolled in hospice

Interventions

OTHER

Caregiver as Navigator: Develop Skills Online (CAN-DO) program

OTHER

Healthy Living online course

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Conditions

Dementia

Locations

Emory Roybal Center for Dementia Caregiving Mastery

Atlanta, Georgia 30322

United States