NCT06469918Recruiting

The Co-Op @ HeartWorks

HeartWorks, Inc.

Start Date

1/24/2024

Completion Date

1/1/2050

Summary

This protocol is a research study involving human subjects diagnosed with Congenital Heart Defects/Disease (CHD). The Co-Op @ HeartWorks is a cooperative between the research platform at HeartWorks and members of the CHD community. Individuals choosing to participate will be referred to as 'members' of the co-op. This study aims to create a database of members medical journey data to inform future clinical innovation and design of clinical trials which address the needs of the members. The knowledge generated from this study will help advance the care of CHD patients through the deliberate action of The Co-Op @ HeartWorks members. Unlike a traditional disease registry, the members of The Co-Op @ HeartWorks will actively inform and contribute to the future studies affecting their health.

Eligibility Criteria

Age Range: No minimum to No maximum

Inclusion Criteria: * Adult with a congenital heart defects/disease * Caregiver of a minor with a congenital heart defect/disease * Authorized family member of a now deceased person with congenital heart defect/disease Exclusion Criteria: \- Not having a congenital heart defect/disease

Interested in This Trial?

Contact the trial locations directly using the information below to learn more about enrollment.

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Conditions

Congenital Heart Disease

Locations

HeartWorks, Inc.

Rochester, Minnesota 55901

United States