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NCT06567769PHASE1Recruiting

Phase 1 Study of GC1130A in Patients With Sanfilippo Syndrome Type A (MPS IIIA)

GC Biopharma Corp

Start Date

11/21/2024

Completion Date

6/1/2027

Summary

The purpose of this study is to evaluate the safety, tolerability, efficacy, pharmacokinetics and pharmacodynamics of recombinant human heparan N-sulfatase (rhHNS, GC1130A) administered via intracerebroventricular access device in patients with Sanfilippo Syndrome Type A (MPS IIIA).

Eligibility Criteria

Age Range: No minimum to 18 years

Inclusion Criteria: * Participants with documented MPS IIIA diagnosis * Participants aged ≥ 12 months and ≤ 18 years Exclusion Criteria: * Participants with significant non-MPS IIIA related central nervous system impairment * Participants with previous complication from intraventricular drug administration * Participants with contraindications for MRI scans and for neurosurgery * Participants that received treatment with any investigational drug or a device intended as a treatment for MPS IIIA within 30 days or 5 half-lives prior to the study * Participants that received a hematopoietic stem cell or bone marrow transplant or received gene therapy

Interventions

DRUG

GC1130A

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Conditions

Sanfilippo Syndrome Type A

Locations

UCSF Benioff Children's Hospital

Oakland, California 94609

United States

University of Minnesota

Minneapolis, Minnesota 55455

United States

National Center for Child Health and Development

Setagaya City, Tokyo

Japan

Ajou University Medical Center

Suwon, Gyeongi-do

South Korea

Samsung Medical Center

Seoul,

South Korea