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NCT06617741Recruiting

Myasthenia Gravis Foundation of America Global MG Patient Registry

Myasthenia Gravis Foundation of America

Start Date

10/12/2013

Completion Date

9/19/2029

Summary

The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are: * How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.

Detailed Description

This is a longitudinal, observational, patient reported registry.

Eligibility Criteria

Age Range: 18 years to No maximum

Inclusion Criteria: * age over 18 * positive MG diagnosis Exclusion Criteria: * age under 18 * misdiagnosed with MG

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Conditions

Myasthaenia GravisMyastheniaMyasthenia Gravis Associated with ThymomaMyasthenia Gravis CrisisMyasthenia Gravis ExacerbationsMyasthenia Gravis GeneralisedMyasthenia Gravis with Exacerbation (Disorder)Myasthenia Gravis, Adult FormMyasthenia Gravis, GeneralizedMyasthenia Gravis, OcularMyasthenia Gravis, ThymectomyMyasthenia GravisMyasthenia Gravis, MuSK

Locations

Myasthenia Gravis Foundation of America

Westborough, Massachusetts 01581

United States