NCT06885918RecruitingAccepts Healthy Volunteers

ALS Research Collaborative

ALS Therapy Development Institute

Start Date

9/12/2014

Completion Date

1/31/2035

Summary

The goal of this natural history study is to learn more about the biological and clinical aspects of amyotrophic lateral sclerosis (ALS). This study's findings will help with drug discovery, biomarker discovery, and outcome measure validation. Adults living with ALS, other motor neuron diseases (MND), a known mutation related to ALS and healthy volunteers contribute prospective and retrospective data to this study remotely. The study is sponsored and conducted by the ALS Therapy Development Institute.

Eligibility Criteria

Age Range: 18 years to No maximum

Inclusion Criteria: * 18 years of age or older * Can communicate in written English * Has a diagnosis of ALS/MND or is a known carrier of an ALS associated mutation Exclusion Criteria: * Significant cognitive impairment that would prevent individual completion and understanding of the informed consent process.

Interested in This Trial?

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Conditions

Amyotrophic Lateral SclerosisALS (Amyotrophic Lateral Sclerosis)ALS With Frontotemporal Dementia (ALS/FTD)Motor Neuron DiseaseMotor Neuron Disease, Amyotrophic Lateral Sclerosis

Locations

ALS Therapy Development Institute

Watertown, Massachusetts 02472

United States