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NCT07278778NARecruiting

Cancer Care Companion

Washington University School of Medicine

Start Date

2/4/2026

Completion Date

8/31/2027

Summary

This study invites parents of children with cancer to use an electronic health record (EHR)-based communication tool, called the Cancer Care Companion, and assess the acceptability, appropriateness, and feasibility of the tool.

Detailed Description

High-quality communication between clinicians and parents is critical to providing optimal care for pediatric cancer. This study engages parents of children with cancer to use an electronic health record (EHR)-based communication tool, called the Cancer Care Companion, and assess the acceptability, appropriateness, and feasibility of the tool. Parent participants will be given 3 months of access to Cancer Care Companion, after which the participant(s) will complete a semi-structured interview. Participants will also complete a survey of validated measures before and after the intervention.

Eligibility Criteria

Age Range: 18 years to No maximum

Eligibility Criteria for Parents: Parents of children with cancer will be enrolled if they meet the following criteria: * They are a legal guardian of a child diagnosed with cancer in the prior 4 weeks. * The child plans to receive or currently receives cancer directed therapy at St. Louis Children's Hospital. * The parent or legal guardian has access to internet through a computer or smart phone. * Speaks and reads in English * The parent or legal guardian agrees to enroll in Epic MyChart to access a proxy portal for their child. Eligibility Criteria for Clinicians: * Clinicians with patients who have parents participating may be enrolled. Clinician participants will be employed at SLCH or Washington University School of Medicine (WUSM). The clinicians will include physicians, nurse practitioners, and nurse coordinators from the leukemia/lymphoma, brain tumor, and solid tumor teams in order to represent the breadth of pediatric cancer diagnoses.

Interventions

OTHER

Cancer Care Companion

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Conditions

Pediatric Cancer

Locations

Washington University School of Medicine/Saint Louis Children's Hospital

St Louis, Missouri 63110

United States