NCT07381179RecruitingAccepts Healthy Volunteers

Voices: Messages of Wisdom and Hope in the Face of Illness

Mayo Clinic

Start Date

11/13/2025

Completion Date

12/13/2027

Summary

This study may help doctors determine where patients and caregivers may need more support and identify ways to maintain patient and caregiver dignity while undergoing treatment.

Detailed Description

PRIMARY OBJECTIVE: I. Change in patient dignity impact scale scores prior to and after completion of patient and caregiver recordings. OUTLINE: This is an observational study. Patients and their caregivers complete an interview and survey on study. Patients also have their medical records reviewed on study.

Eligibility Criteria

Age Range: 18 years to No maximum

Inclusion Criteria: * Age ≥ 18 years * Diagnosis of chronic or progressive illness with a primary caregiver, should patient wish to involve one * Willing and able to participate in a semi-structured recording lasting approximately 60 minutes. Dyad recordings conducted for participants who elect to involve a caregiver * Willing and able to participate in a single follow-up recording. Dyad follow up recordings conducted for participants who elect to involve a caregiver Exclusion Criteria: * Uncontrolled and/or intercurrent illness which limits participation in study recording * Vulnerable populations: persons lacking capacity for understanding participation in this study

Interventions

OTHER

Non-Interventional Study

Interested in This Trial?

Contact the trial locations directly using the information below to learn more about enrollment.

Expressing interest lets you review the study and consent before we connect you with the research site.

Conditions

Hematopoietic and Lymphatic System NeoplasmMalignant Solid Neoplasm

Locations

Mayo Clinic in Rochester

Rochester, Minnesota 55905

United States