Quality of End-of-Life Care for Children With Cancer
Start Date
7/31/2026
Completion Date
1/31/2031
Summary
This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end-of-life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low-quality end-of-life care as well as recommendations for potential future interventions.
Detailed Description
PRIMARY OBJECTIVE: I. Examine the role of access to care, patient/family healthcare interactions, and stress in variation in quality of end-of-life (EOL) care. OUTLINE: This is an observational study. PART 1: The medical records of deceased patients are reviewed on study. PART 2: Bereaved parents complete a survey and may participate in an interview on study.
Eligibility Criteria
Age Range: 18 years to No maximum
Interventions
Non-Interventional Study
Conditions
Locations
Children's Hospital of Alabama
Birmingham, Alabama 35233
United States
Arkansas Children's Hospital
Little Rock, Arkansas 72202-3591
United States
Kaiser Permanente-Oakland
Oakland, California 94611
United States
Alfred I duPont Hospital for Children
Wilmington, Delaware 19803
United States
Golisano Children's Hospital of Southwest Florida
Fort Myers, Florida 33908
United States
Memorial Regional Hospital/Joe DiMaggio Children's Hospital
Hollywood, Florida 33021
United States
Nemours Children's Clinic-Jacksonville
Jacksonville, Florida 32207
United States
Nemours Children's Hospital
Orlando, Florida 32827
United States
Nemours Children's Clinic - Pensacola
Pensacola, Florida 32504
United States
Children's Healthcare of Atlanta - Arthur M Blank Hospital
Atlanta, Georgia 30329
United States
Augusta University Medical Center
Augusta, Georgia 30912
United States
Blank Children's Hospital
Des Moines, Iowa 50309
United States
Sinai Hospital of Baltimore
Baltimore, Maryland 21215
United States
Corewell Health Grand Rapids Hospitals - Helen DeVos Children's Hospital
Grand Rapids, Michigan 49503
United States
Bronson Methodist Hospital
Kalamazoo, Michigan 49007
United States
Children's Mercy Hospitals and Clinics
Kansas City, Missouri 64108
United States
Renown Regional Medical Center
Reno, Nevada 89502
United States
Albany Medical Center
Albany, New York 12208
United States
State University of New York Upstate Medical University
Syracuse, New York 13210
United States
Montefiore Medical Center - Moses Campus
The Bronx, New York 10467
United States
Rainbow Babies and Childrens Hospital
Cleveland, Ohio 44106
United States
Children's Hospital of Pittsburgh of UPMC
Pittsburgh, Pennsylvania 15224
United States
Rhode Island Hospital
Providence, Rhode Island 02903
United States
Dell Children's Medical Center of Central Texas
Austin, Texas 78723
United States
UT Southwestern/Simmons Cancer Center-Dallas
Dallas, Texas 75390
United States
University of Virginia Cancer Center
Charlottesville, Virginia 22908
United States
Providence Sacred Heart Medical Center and Children's Hospital
Spokane, Washington 99204
United States
Saint Vincent Hospital Cancer Center Green Bay
Green Bay, Wisconsin 54301
United States