Quality of End-of-Life Care for Children With Cancer
Start Date
6/15/2026
Completion Date
1/31/2031
Summary
This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end of life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low quality end of life care as well as recommendations for potential future interventions.
Detailed Description
PRIMARY OBJECTIVE: I. Examine the role of access to care, patient/family healthcare interactions, and stress in variation in quality of end-of-life (EOL) care. OUTLINE: This is an observational study. PART 1: The medical records of deceased patients are reviewed on study. PART 2: Bereaved parents complete a survey and may participate in an interview on study.
Eligibility Criteria
Age Range: 18 years to No maximum
Interventions
Non-Interventional Study
Conditions
Locations
Kaiser Permanente-Oakland
Oakland, California 94611
United States
Alfred I duPont Hospital for Children
Wilmington, Delaware 19803
United States
Memorial Regional Hospital/Joe DiMaggio Children's Hospital
Hollywood, Florida 33021
United States
Nemours Children's Clinic-Jacksonville
Jacksonville, Florida 32207
United States
Nemours Children's Hospital
Orlando, Florida 32827
United States
Nemours Children's Clinic - Pensacola
Pensacola, Florida 32504
United States
Sinai Hospital of Baltimore
Baltimore, Maryland 21215
United States
Corewell Health Grand Rapids Hospitals - Helen DeVos Children's Hospital
Grand Rapids, Michigan 49503
United States
Bronson Methodist Hospital
Kalamazoo, Michigan 49007
United States
Albany Medical Center
Albany, New York 12208
United States
Montefiore Medical Center - Moses Campus
The Bronx, New York 10467
United States
Children's Hospital of Pittsburgh of UPMC
Pittsburgh, Pennsylvania 15224
United States
Rhode Island Hospital
Providence, Rhode Island 02903
United States
UT Southwestern/Simmons Cancer Center-Dallas
Dallas, Texas 75390
United States
University of Virginia Cancer Center
Charlottesville, Virginia 22908
United States