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NCT04899947Recruiting

Child and Adolescent Registry for Participants With Narcolepsy

Jazz Pharmaceuticals

Start Date

10/10/2020

Completion Date

10/1/2024

Summary

CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed. The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email catnap@pulseinfoframe.com. The Online Patient Enrollment System, CATNAP website, can also be found in the references section.

Eligibility Criteria

Age Range: No minimum to 17 years

Inclusion Criteria: * Any child or adolescent with a physician-confirmed diagnosis of narcolepsy * Age less than 18 years * Willing to participate in the Registry and complete the informed consent form * Able to participate in English based registry Exclusion Criteria: * Age 18 years or more * Fail to complete the informed consent form

Interested in This Trial?

Contact the trial locations directly using the information below to learn more about enrollment.

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Conditions

Narcolepsy

Locations

Phoenix Children's Hospital

Phoenix, Arizona 85016

United States

University of Arizona

Tucson, Arizona 85719

United States

University of Arkansas

Fayetteville, Arkansas 72701

United States

Arkansas Children's Research Institute

Little Rock, Arkansas 72202

United States

Stanford University

Redwood City, California 94063

United States

University of California San Diego

San Diego, California 92093

United States

Children's National Medical Center

Washington D.C., District of Columbia 20010

United States

Children's Research Institute

Washington D.C., District of Columbia 20010

United States

University of South Florida

Tampa, Florida 33620

United States

Lurie Children's Hospital of Chicago

Chicago, Illinois 60611

United States

Johns Hopkins University

Baltimore, Maryland 21205

United States

Boston Children's Hospital

Boston, Massachusetts 02115

United States

Trinity Health-Michigan

Grand Rapids, Michigan 49503

United States

Mayo Clinic

Rochester, Michigan 55905

United States

St. Luke's Hospital

Chesterfield, Missouri 63017

United States

Children's Mercy Hospital

Kansas City, Missouri 64108

United States

Northwell Health

Manhasset, New York 11030

United States

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio 45229

United States

University Hospitals Cleveland Medical Centre (UHCMC)

Cleveland, Ohio 44106

United States

Nationwide Children's Hospital

Columbus, Ohio 43205

United States

Ohio Sleep Medicine Institute

Dublin, Ohio 43017

United States

Geisinger

Danville, Pennsylvania 17822

United States

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania 19104

United States

Texas Children's Hospital (Baylor College of Medicine)

Houston, Texas 77030

United States

Children's Hospital of the King's Daughters

Norfolk, Virginia 23507

United States