An Observational Study of Individuals With Isolated Dystonia
Start Date
6/17/2025
Completion Date
10/1/2026
Summary
This is an observational study in individuals with isolated (or primary) dystonia that involves more than one body region. The purpose of the study is to collect detailed information to help your physician and other researchers understand how dystonia impacts your and other patients' lives and how the disease changes over time. The study may also help researchers better understand the clinical scales that are commonly used to evaluate dystonia symptoms and how they affect various areas of life such as well-being, pain, relationships and social interactions, and progress over time. Because this is an observational study, you will not receive any interventional treatment in the study.
Detailed Description
The primary goal of this observational study is to further characterize and quantify disease severity and impact (including change over time) in individuals with either segmental, multifocal, or generalized dystonia in a structured manner, utilizing and comparing various well-known scales. In addition, medication history and any intercurrent events related to the participant's health (such as, but not limited to, hospitalizations, new diagnoses, etc.) will be captured. This study will provide standardized data to support planned future interventional clinical studies in this patient population and will provide a greater understanding of the population under study and the performance of clinical ratings scales.
Eligibility Criteria
Age Range: 12 years to 65 years
Conditions
Locations
Vima Site #004
Scottsdale, Arizona 85258
United States
Vima Site #028
Sun City, Arizona 85351
United States
Vima Site #010
Aliso Viejo, California 92656
United States
Vima Site #030
Los Angeles, California 97239
United States
Vima Site #022
Palo Alto, California 94301
United States
Vima Site #019
Englewood, Colorado 80113
United States
Vima Site #003
Boca Raton, Florida 33486
United States
Vima Site #009
Gainesville, Florida 32611
United States
Vima Site #008
Miami, Florida 33176
United States
Vima Site #031
Orlando, Florida 32825
United States
Vima Site #005
Atlanta, Georgia 30322
United States
Vima Site #027
Chicago, Illinois 60611
United States
Vima Site #007
Olney, Maryland 20832
United States
Vima Site #002
Farmington Hills, Michigan 48334
United States
Vima Site #014
Albuquerque, New Mexico 87106
United States
Vima Site #017
Commack, New York 11725
United States
Vima Site #018
New York, New York 10029
United States
Vima Site #024
New York, New York 10065
United States
Vima Site #029
Portland, Oregon 97239
United States
Vima Site #020
Philadelphia, Pennsylvania 19107
United States
Vima Site #021
Charleston, South Carolina 29407
United States
Vima Site #016
Memphis, Tennessee 38157
United States
Vima Site #006
Nashville, Tennessee 37232
United States
Vima Site #025
Dallas, Texas 75390
United States
Vima Site #026
Georgetown, Texas 78628
United States
Vima Site #012
Houston, Texas 77030
United States
Vima Site #011
Richmond, Virginia 23298
United States
Vima Site #023
Kirkland, Washington 98034
United States
Vima Site #015
Spokane, Washington 99202
United States