NCT07142005Recruiting

Cultural Adaptation of an Educational Tool in Medullary Thyroid Cancer

M.D. Anderson Cancer Center

Start Date

8/15/2025

Completion Date

3/31/2028

Summary

To find good information about medullary thyroid cancer that is easy to understand and reliable, so researchers aim to design some new educational materials to help.

Detailed Description

Primary Objectives 1. To co-develop a culturally-adapted educational tool for the Latino/Latina MTC population using the previously developed MTCEducate.org as a framework. (Phase 1) 2. To test, refine, and produce a culturally adapted educational prototype and is intended to assess participants' understanding after reviewing the decision aid as part of the iterative testing and refinement process (Phase 2) Secondary Objectives 1. To assess the tool's acceptability post-production among a broader population of Latino(a) MTC participants and caregivers using the Ottawa Acceptability Scale (Phase 3) 2. To disseminate the educational tool to a broader population of Latino(a)s 3. To summarize the clinico-demographics of educational tool users

Eligibility Criteria

Age Range: 18 years to No maximum

Inclusion criteria: * Provision of signed and dated informed consent form * Males and females; Age: ≥18 years old * Identified ethnicity as "Hispanic" or "Latino/Latina" * Ability to read, write, and speak Spanish * Those who are pregnant are eligible to participate * Have or will face this decision, including: a. Participant/survivor - who has medullary thyroid carcinoma, as determined by a clinician or documented in Multi-Institutional Medullary Thyroid Cancer Collaborative Registry; b. Caregiver/family member - of Participant/survivor who has medullary thyroid carcinoma, as nominated by the Participant/survivor Exclusion Criteria: * Those \< age 18 * Ethnic identity as non-Hispanic or non-Latino/a individual * Individuals with cognitive or psychological impairment (e.g., depression, anxiety, severe mental illness as documented in the registry

Interventions

OTHER

Interviews

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Conditions

Medullary Thyroid Cancer (MTC)Cultural Adaptation

Locations

MD Anderson Cancer Center

Houston, Texas 77030

United States